BareFootChallenge

I’m a little bit late with this one, as usual, but what’s a couple of months between friends eh?! – it’s still a very important message to get out and the Changing Places campaign, which the #barefootchallenge is all about highlighting, is very much alive!

So this is a post all about toilets, which, let’s face it, are a necessary thing in everyone’s lives! But for our little girl (and many, many other children & adults) the right kind of toilet facilities are just not normally available.

Twinkle is now 5.5 years old and is not able to use a toilet, so she wears nappies/pads.  Twinkle cannot stand without support so, for the time being, she has to be changed lying down.  Although very slim for her age, she’s also very tall and outgrew the little baby change tables long ago.  Since then, we’ve been very limited on where she can be changed comfortably, hygienically and with at least some amount of dignity.

The usual options for her are:

  1. Lie down on a public toilet floor. A room that (even the wheelchair accessible ones) don’t have space for a wheelchair, a person lying down and a carer all at once without squashing up against toilet bowls or sanitary bins.  (I myself have OCD so the very idea of putting my little girl in this position, quite frankly, freaks me out!)
  2. Perch precariously on the baby change table (which we sometime still manage to do, some are bigger than others),
  3. Change in the car (which we quite often resort to doing!) or
  4. Limit the time we are out and about to avoid changing at all.

# Bare Foot ChallengeThe #barefootchallenge was started on Twitter (@barefootoffical) by a fellow mum to raise awareness of the inadequacy of current facilities.

The challenge being:

Can you bring yourself to put your own bare feet on a public toilet floor?

If you struggle with that, imagine having to lie down on one like many children and adults with disabilities have to!?

As you can see from my challenge picture, my answer was NO!  I had to do my challenge in my own loo!

The easy solution to this issue is for more large public buildings and venues to install a Changing Places toilet! A facility with more space for carers, a height adjustable changing bench and a hoist.

I am ashamed to admit, until Twinkle started to outgrow the standard baby change facilities it hadn’t really occurred to me that alternatives to the standard disabled toilets were needed.  I hadn’t heard of Changing Places toilets.  This is pretty shocking because until I had children I worked in architectural practice.  I worked in housing so I knew a whole raft of other care design standards (e.g. lifetime homes, wheelchair design guide….), but not changing places. I know it’s a relatively new standard (to solve a very old problem!) but I would have thought I would at least have heard of it even if not used it in my projects?! Which makes me wonder how many of my fellow architects know of it, and know just how much a difference it could make?

Changing Places toilets do get a brief mention in the Building Regulations, but disappointingly (despite the Disability Discrimination Act (1995) and the more recent Equalities Act (2010)) they’re still not a requirement in any category of building,  just a recommendation:

“In large building developments, separate facilities for baby changing and an enlarged unisex toilet incorporating an adult changing table are desirable. Facilities incorporating adult changing tables are more commonly known as Changing Places Toilets and further guidance is available from the Changing Places Campaign website (www.changing- places.org) or by reference to guidance in section 12.7 and Annex G of BS 8300.” – Building Regs M Vol 2 (M3 5.6)

I’d say this is a pretty fundamental piece of inclusion lacking from legislation.

Thankfully the Changing Places campaign is starting to gather momentum, and they have recently launched a fantastic new map showing the locations of UK Changing Places.  It even has a journey planner element (a very useful feature!).  The map also sadly highlights  just how few and far between these facilities are (although I’m secretly hoping there are more than shown, and just not registered…?).  For example our own visitor/tourist hotspot city, Cambridge, only has 2 changing places listed! One of which is at the hospital – a location that the average day-tripper or holiday maker doesn’t normally intend to put on their destination list!

A friend at the Firefly Friends community forum, for parents of children with special needs, has also launched a campaign parallel to the Changing Places campaign – Space to Change.  Space to Change was set up to try and encourage other smaller venues, who maybe don’t have the funds or the space to install a fully compliant changing places facility, to at least improve what they have and provide more accessibility for a greater range of needs.  Perhaps install a fixed bench in a larger WC cubicle which would at least provide a more comfortable & hygienic space to lie down, and also make the transfer from wheelchair much easier than the floor!

So! Would you stand on a public toilet floor in your bare feet or lie down on the floor?

If not, then please spread the word about the need for Changing Places toilets!

 

Edited (30.03.16) to add:

And you can add your name to this petition calling for Changing Places to be requirement and not just recommendation!

 

campaigntastic

A couple of weekends ago was a big first for me! I spent a whole day and an entire night in a new city without my family! And everyone was ok – not just ok, we all enjoyed it – woo hoo!

Papers from SWAN Bloggers workshopIt was a fab weekend.  The first (hopefully of more to come!) workshop of SWAN UK parent bloggers.  We were there primarily to discuss the upcoming Undiagnosed Children’s Day (UCD), on 29th April, but also to talk about all things blog and social media and how to spread the word about living without a diagnosis, how that affects children, their families, access to health services, education and social care.  With the very lovely bonus that I got to meet a bunch of amazing, determined, funny, normal and unique blogging women! – in real 3D life! – and those of us staying overnight took the opportunity to go out for a lovely meal, a chat (and of course a few glasses of vino blanco!)!

It was so funny to be out and about without my little ones, while talking a lot about them! I had to stop my auto-pilot manoeuvre, when sitting down at the table, to move all the cutlery and glasses out of Twinkle’s reach!

The workshop was really great, the fab SWAN coordinators were totally on it, and as well coming up with lots of exciting ideas for UCD that we can work on collectively, it has left me energised and ready to get writing more for my own blog and given me ideas that I can transfer to some of my own ‘campaigns’!

An aside to the day for me was that, after noticing a flurry of people asking about house adaptations on the SWAN parent forum, I put it out there to the bloggers attending the workshop that I’d be happy to have a chat over lunch or dinner about accessible design and the grant process. It’s pretty telling about the state of the DFG (Disabilities Facilities Grant) process, that out of the 11 people due to attend the workshop (excluding me, another designer & the SWAN reps!), FIVE (yes 5!, almost 50%!) of them I’ve either talked to in the past, or they wanted to talk to me on the day about adaptations!

I would love to be able to give more helpful advice about the actual grant process, but much as I’ve tried to actually understand the system, the more I read, or am told, the more confusing it seems to get!  The first thing seems to be that although there is a core national critera, each county appears to have different ‘rules’ about the detail, and finding those rules…..hmm, Franz Kafka springs to mind!

Laptop showing house planOur own experience has, so far, been good.  Our OT has been great and the slow progress is mostly our own fault as we have opted to take control of the reigns, do our own drawings, planning application and to administer the construction work.  However this is my ‘day job’ (or was until I had the kids!), so I’m confident about doing this.  Most people don’t have past experience of building projects and have to rely on the advice & services given by the local authority, which as I say, seems to differ greatly from county to county and doesn’t appear (ever?) to include any architectural design advice!

Many of my friends are telling me that the advice they have been given may improve accessibility in specific ways, but also compromises their homes in other, more fundamental ways.  With the grant (understandably) being a limited sum, it so often doesn’t cover the work required, so people are having to look into borrowing more, to do work that will help in some ways but will ‘devalue’ their houses, leaving them stretched financially and potentially in a worse position if they have to sell and move home.  A few have just opted out completely and are struggling on with no accessibility improvements.

I’m re-energised to try and get a message to those who can make a difference in this process.  A more cohesive grant process is needed, a more holistic attitude to the house and family and a long term sustainable view.

I’m compiling a to do list to start ‘shouting’ more loudly about this issue.  Of course, if there were more homes built to inclusive design and accessibility standards, people would have the option to move house, but there’s not – there’s really little or no choice in most areas!

First on my list I think is to start gathering case studies and survey experiences to try and demonstrate where and why improvements are needed!

So….who want’s to tell me their story!?