Inclusive British Standards?

Changing Places Toilets entrance signage

The British Standard Institute’s document that deals with accessibility in buildings and the built environment (BS 8300) has been under review for some time and last month, the greatly anticipated (well by me anyway!) draft of BS 8300 for public consultation was published.

BS 8300 is a massive document with a wide ranging remit (excluding dwelling design), containing lots of essential information to enable designers, developers and service providers to take actions to enable access to our built environment for people across the full spectrum of disabilities (not just ramps and lifts – although of course they are very important!). Including this particularly welcome section about including Inclusive Design in the development process:

“An inclusive environment recognizes and accommodates differences in the way people use the built environment. It facilitates dignified, equal and intuitive use by everyone. It does not physically or socially separate, discriminate or isolate. It readily accommodates and welcomes diverse user requirements – from childhood to adulthood through to old age, across all abilities and disabilities and embracing every background, gender, sexual orientation, ethnicity and culture. It helps people to live independently and participate fully in all aspects of life.” (Clause 4, BS 8300 draft)

Changing Places Toilets entrance signageHowever (as any regular readers will know!), one of the aspects of accessibility that particularly impacts my family (and approximately 250,000 other individuals, plus their families and friends, in the UK!) is a shortage of accessible toilets with hoist and changing bench. The only description for this need currently in the BSi standards is called a Changing Places Toilet.

Therefore my primary focus so far has been on reviewing the sanitary facilities section and I’m afraid I’ve found the amendments extremely disappointing, and counter to the lovely inclusive statement above.  It still reads to me as if changing places toilets have just been added on rather than included within the standards for sanitary provision.

I’ve laid out some of my initial thoughts on the accessible toilets section in a previous post, describing why we still feel Slightly Invisible and I will publish some more of my detailed thoughts on specific clauses (including my own suggestions for improvements) soon.

I know this legislation stuff can be a bit dry (downright boring?!) and jargon filled, but it is so important!  So much of the challenge in campaigning is the drudgery of contacting individual providers, who may or may not be receptive to comments and many of whom throw back the old, ‘we’ve complied with all current legislation‘ chestnut.

In building legislation, there’s so much stuff to read, and it can be confusing even for those of us in the industry so it’s massively important that current legislation is clear, and also clearly fair (for the users and the providers).

So I thought it might help to try and explain what a BSi Standard (like BS 8300) is, and how it relates to other legislation and regulations…..

The explanation on the BSi website is:

“In essence, a standard is an agreed way of doing something” but is “designed for voluntary use”

“The point of a standard is to provide a reliable basis for people to share the same expectations about a product or service.”

The BSi standards are accepted guidelines, in some cases best practice guidelines for particular situations, products services, put together by a wide range of interested parties (in the case of buildings that is users, designers, consultants, developers, service providers etc).

They stand alongside, and support other relevant legislation, the key ones for building accessibility being the Building Regulations and the Equality Act.

Building Regulations

In England, the section that deals with accessibility is Approved Document M, Volume 2 (or Part M2 for short, Part M1 for accessibility in homes).  Scotland, Wales and NI all have their own Building Regulations documents, but all have a broadly similar approach to accessible toilet legislation as Part M (hence the pet name for the standard style of accessible toilet being the “Doc M toilet” or the fittings being called the “Doc M Pack’).

As buildings, and their contexts, vary so much (from existing buildings to newbuild, from homes to offices and sports venues, tiny to enormous, hilly sites to flat…..) the Building Regulations are set out as an “Approved” way to do things, an approved way to meet a host of other legislation affecting buildings and people and the environment etc.  You do not have to meet legislation in the way building regulations say so, if people want to, or find they can’t comply for some reason or another, there are concessions or alternative methods that may be approved on a case by case basis.  However most developments do follow the regulations if they can, as everyone knows where they are then!

There is only a small mention of Changing Places Toilets in there, which references the BS 8300 document and the Changing Places Consortium guidance.

Building regulations are only enforceable at the time of development or refurbishment, so some people argue that changing them won’t help the situation for existing buildings.

The Equality Act

The Equality Act 2010  is a more overarching legislation that covers all equality issues from race to gender, employment to access.  It does not set out specifics on how buildings should provide access, just that they shouldn’t put disabled people at a “substantial disadvantage”.

This, from the beginning of Part M of Building Regulations:

“Although the guidance in this Approved Document, if followed, tends to demonstrate compliance with Part M of the Building Regulations, this does not necessarily equate to compliance with the obligations and duties set out in the EA. This is because service providers and employers are required by the EA to make reasonable adjustment to any physical feature which might put a disabled person at a substantial disadvantage compared to a non-disabled person. In some instances this will include designing features or making reasonable adjustments to features which are outside the scope of Approved Document M. It remains for the persons undertaking building works to consider if further provision, beyond that described in Approved Document M, is appropriate.”

So although there is some wiggle room for developers and service providers in both the BSi Standards and the Building Regulations, they still play an extremely import role in setting out what is expected in buildings and venues and what would be considered a ‘reasonable adjustment’ under the Equality Act legislation.  It’s therefore crucial that they reflect fairness to all, and in a clear way.

So if any aspects of accessibility affect you or someone you know, please do  have a look at this draft document!

You can register with the BSi to view the draft and submit your own comments on the standards (until 13th August), as an individual or on behalf of an organisation, by entering BS 8300 into the search bar, here:  BS 8300 for public consultation

You can find a selection of posts by other bloggers about how the lack of Changing Places Toilets affects them here

Accessibility Stories 06.17

a rusty key with #accesslinky written below

Thank you to all those who joined the linky last month! I hope you all enjoy reading this little round up!

Round Up:

There were two fantastic posts on communication linked up last time.

I absolutely love this one by Little Mama Murphy about the training session she attended by Jo Grace about Communicating Without Words.  I had happy tears running down my face reading it. I LOVE the concept of ‘sensory being’ and ‘literary being’! It feels just right to describe the differences between my EJ & EW in that way!

Rainbows are Too Beautiful gave a shout out to the upcoming Singing Hands DVD  which also sounds fab! I did some baby and toddler singing and signing classes with both of mine when they were young.  I’ve been a bit lax with my makaton recently without the structure of the class to keep me motivated, so it would be fantastic to have a fun DVD aimed at an older audience!  Music is definitely key where it comes to engaging EJ!

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

When it comes to getting around on wheels, I think there’s sometimes a misconception that ‘everywhere’s accessible these days’, but that really isn’t true, even some of the really fundamental stuff in newly refurbished buildings, as Ordinary Hopes highlights in her post Just Because Daleks Can Do Stairs

Mum on a Mission sets it out in black and white how society is forcing people to wear nappies if they want to get out and about, due to a lack of understanding and action on changing places accessible toilets (from legislators, designers, developers through to service providers) in My 8yr Old Isn’t Potty Trained and It’s Your Fault

It really seems ridiculous that some people’s outings revolve in detail around where they can go to the toilet, so Ordinary Hopes wants to say Thank You Exeter Services for acknowledging the need and acting upon it! As Ordinary Hopes says, it’s not only enabled her and her son to go out, but also to become customers and spend their money with them!

Speaking of customers, Brody Me and GDD linked up her post on Products SEND Parents REALLY want! Retailers are missing a market in other ways than just getting their customers into their shops or onto their websites, in that there’s a whole market out there for useful, comfortable, (affordable!) and well designed products for disabled children and adults! What can you add to her list?

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!

Info on how to join in below:

Linky Info:

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces, products and/or activities below….

And do check in again next month to read the round up!

Guidelines:

    1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
    2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
    3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
    4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
Our Inclusive Home



Slightly Invisible

Slightly Invisible

Last week, during Carer’s Week, a twitter conversation between two of my campaigner friends made me immediately think of one of our favourite books, “Slightly Invisible” by the fabulous Lauren Child (the brand new Children’s Laureate!).

Twitter conversation between @ordinaryhopes and @topeeornottopeeIn the story, Lola and her (imaginary?) friend, Soren Lorensen, drink an invisibility potion that her brother Charlie has made with his friend. Lola, of course, doesn’t become invisible but Soren Lorensen does…. Lola is adamant that she is also invisible and says:

“You can only see me because you know what I look like. You can’t see Soren Lorensen at all”!

Just as Ordinary Hopes said in her tweet, and her post The Invisible Boy, so many people just don’t ‘know what we look like’ either!

Perhaps they can’t see us because they don’t understand us or our needs? Perhaps we’re only slightly invisible and they can see some of our more obvious needs, like wheelchair access (not that that mean’s wheelchair access is a given!), but not our less obvious needs?

Designers, developers & service providers could be forgiven for not knowing what we look like.  Nobody can ever know what other people’s needs are.  Disability is such a massive spectrum, we are all slightly invisible to each other.

That is why regulations, standards and guidance are so important!

To help make everyone visible to those decision makers and providers of facilities….

At the end of last week the BSi (British Standards Institute) published a long awaited consultation draft of the proposed changes to BS 8300.  This is the British Standard document which addresses accessibility in ALL aspects of our built environment (both outside spaces and in buildings).

I’ve been anxiously anticipating its publication (yes I am rock and roll!) and hope to publish some posts over the next few weeks on various topics covered that I have professional interest in or personal experience of.

The type of facility (or lack of) that impacts our family most, when out and about, is accessible toilets for people who can’t use the loo, those who need help to change continence pads, or those who can’t transfer to the loo without help of a hoist and/or more than one carer.  So the only section of the BS I’ve read through so far has been the ‘Sanitary Facilities’ chapter….

….and I have to say anti-climax doesn’t even cover it.

I am really disappointed to see that there’s little change in relation to those who need help to use the toilet.

I don’t believe this draft of BS 8300 will help the decision makers see us any more than they did before.

I’ve yet to do a detailed compare and contrast, but my first thoughts are that there are still clearly two classes of disabled people when it comes to toilet provision.

The intro to the sanitary accommodation chapter (chapter 18) sounds great!

“Disabled people ought to be able to find and use suitable toilet accommodation no less easily than non‑disabled people. The space requirements for suitable toilet accommodation are generally driven by the requirements of wheelchair users, although the facilities might also be used by people with other impairments..” (Clause 18.5)

“At least one unisex wheelchair accessible toilet (see 18.5.3.1) should be provided at each location where toilet accommodation is provided for the use of customers, employees or visitors” (Clause 18.5.1)

So far so good!  Wheelchair accessible toilets at each location where the other toilets are! Brilliant!

If only it meant all wheelchair users.

The ‘unisex wheelchair accessible toilet’ referred to is only suitable for those who can independently transfer to the WC.  People who need hoist or carer assistance and/or who can’t use the loo at all and need somewhere to lay down to change continence pads cannot use these toilets.

In contrast to the above inclusive statement, the recommendation for where it’s appropriate to provide toilets with a changing bench and hoist (a Changing Places Toilet), is:

“Any larger building where the public have access in numbers or where visitors might be expected to spend longer periods of time is a suitable venue for a CP facility. Such facilities are particularly important in buildings that might offer the only suitable sanitary accommodation within a locality, or in buildings where public services are provided, such as those operated by local authorities. Some commercial facilities such as large retail and leisure premises might be suitable as they provide longer opening hours and are likely to have a regular cleaning regime.” (Clause 18.6)

The way I think this will be interpreted by business (and the way I think it has been so far!), is that we are a municipal ‘problem’ and businesses don’t need to bother with these ‘special’ facilities.  It’s up to the government to provide them in strategic locations, not in locations where people actually are, or want to go.  Only if you have a large building, that isn’t near another large building that already has one, do you need to bother thinking about it!

Reading this during Mencap’s Learning Disability Week, it brings it home to me that we have a long way to go to break free of the ingrained attitude in society.  The older my daughter gets, the more it feels like people with complex needs are seen as other, even within the access community.  That families like ours are expected to accept their lot, and be grateful if the council provide some facilities to enable them to get out of their homes occasionally.

Both the current and this draft of the BS for toilets with a bench and hoist are written in a very exclusive way. The only solution given being a changing places toilet, which is a combined WC and shower, and which should be locked and ‘normal disabled people’ and ‘regular families’ should be directed to the ‘normal toilets’ – I paraphrase here, but that is the jist of it.  I really believe there are various design solutions which could create more flexible, inclusive facilities that could be more easily ‘sold’ to business as an asset for more customers/visitors/staff rather than an obligation (but I’ll blog about that later).

Slightly InvisibleThis lack of provision is something that affects disabled people of all ages, but also their wider circle.  You cannot go somewhere that your friend or loved one cannot access a toilet!

I can only speak for our family.  For myself and my husband as carers, and to represent our daughter who, quite literally, doesn’t, and may never, have a voice.  However I feel that many of my campaign friends are at a similar stage of life to us, watching as our kids grow apart from society as they outgrow the baby change unit.  Seeing the opportunities to visit places and join in activities with our wider family and friends slip away.

We don’t want to allow that to happen.  We want to retain the opportunities for inclusion for our families.

We don’t want our kids, their siblings and friends to be limited by society’s views of disability.

We need to be visible to those people who make the decisions on the most fundemental of facilities (the toilet) on whether to include or exclude us.

Spectrum Sunday
Mummy Times Two

Accessibility Stories 05.17

a rusty key with #accesslinky written below

Thank you to all the linker uppers from last month!

Round Up:

Starting the round up with a couple of neurodiversity posts (access isn’t only about ramps and lifts!)…

Rainbows are too Beautiful wrote about an experience a friend had had at an entertainment venue which prompted her to say, yes! Yes He is Perfect… AND he has a Disability!

The World of Gorgeous Grace speaks about the need for better advice and access to services around learning disability, as she reflects on GG’s Learning Disability Journey.

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

Wheelchair Chic Home joined the linky with a fantastic Top 10 House Buying Tips When You Have Mobility Issues! This is definitely one to share with anyone looking to rent or buy an accessible or adaptable home!  If only the agents & developers understood the value in these features and marketed accessible homes properly so people could find them (and people might build more of them!)!

Another 10 was shared by the Firefly Community: Accessible Toilet Campaigners: 10 famous faces! So lovely to learn more about the people behind the campaigns, bringing a huge variety of experience and expertise to the table (or the bench?)! Really honoured to be included in the list myself!

And a fellow Firefly famous face, Rachel George of Ordinary Hopes linked a couple of her fab posts last month too.  The first, questioning how horrified people might be if non-disabled children (or adults!) were forced to wear nappies/pads! in her post: Some Things Are Just Wrong.

In contrast, Ordinary Hopes, also shared a most fabulous accessibility story, One Perfect Day, made possible by Cornwall Accessible Activities Programme in conjunction with Mobiloo (a charity providing mobile Changing Places Toilet facilities) – real inclusion! Just how it should be!

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!
Info on how to join in below:

Linky Info:

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below…. And do check in again next month to read the round up!

Guidelines:

    1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
    2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
    3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
    4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
Our Inclusive Home



Accessibility Stories 04.17

a rusty key with #accesslinky written below

What a fantastic range of blog posts linked up last month!

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

 Round Up from last Month

There were a number of posts on one of my regular (and favourite!) themes, changing places toilets. Ordinary Hopes linked this very powerful post “When this is the best option you have“, i.e. the toilet floor or don’t go out at all.  Clos-o-Mat and Ordinary Hopes also commented on the lack of understanding of the need for assisted toilet provision until it’s something you need yourself, in “I’d never even thought about it” a key reason many are campaigning that it’s “Time for change” for the building standards, to be made clearer and more comprehensive!

I’m very excited to *meet* a new blogger friend, Wheelchair Chic Home, joining in this month with her fab “5 tips for styling your house to accommodate a disability” and with some more specific ideas on “Storage Ideas to hold crutches or walking sticks” in a stylish way!  I love this blog, it’s totally up my street and I’ll definitely be following for more inclusive design ideas!

My daughter EJ has sensory processing issues which affect her in all different ways (touch, vision, hearing that we know about).  Sensory processing seems to be being more and more widely acknowledged as a challenge in accessing our world for set up for the ‘average person’ and of course can vary greatly from individual to individual and vary in intensity. Rainbows are too Beautiful linked this post about how something as seemingly simple as a particular welly boot (considered a staple in every child’s wardrobe!) can enable inclusion in outdoor family activities in “We’ve got to get our kids outside!

Access isn’t all about ramps and grab rails, and I had two posts this month, telling of the frustrations faced trying to access childcare and education for their children with very different needs. Rainbows are too Beautiful’s “30 hours free childcare” and The Long Chain’s “Benjamin doesn’t tick boxes” illustrating the catch 22 of local authority juggling of services and funding between education, social care and health care.

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!  
Info on how to join in below:

Linky Info

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below…. And do check in again next month to read the round up!

Guidelines:

    1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
    2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
    3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories and/or the shorter #AccessStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
    4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
Our Inclusive Home



Accessibility Stories 02.17

A rusty key with title "Accessibility Stories 2017 Linky"

Thank you so much to all those who linked up last month!

Round Up from last Month

At this time of year many of us are thinking about booking our summer holidays, however for families with physical and sensory access needs, staying away from  home can be stressful! It was lovely to read this positive holiday experience by Rainbows Are Too Beautiful.  Particularly interesting for us as both my kids love being outside, especially EJ who thrives on the immersive sensory experience nature provides (the light and shade, the feel of wind and rain, the differences in sounds, smells and even tastes) so a forest holiday would be ideal for us, and a holiday home with a safe outside space would be perfect!

A rusty key with title "Accessibility Stories 2017 Linky"A few of the posts last month were about how just getting out of the house can be a mission, never mind going on holiday!  In this aptly named post, Project Get Out of the House, Orange This Way determines to start a new #wheelygood resource for Devon and Cornwall to help visitors and locals alike to find wheel friendly places & activities!  In Where Were the Good People, Ordinary Hopes asks why people stand by and allow others to struggle, and even become victims of bullying behaviour, sometimes in circumstances where a little thoughtfulness or a kind gesture could easily make all the difference.  While on the other hand, Raising a Superhero tells of a lovely Christmas outing where inclusion was at the heart of the experience and is definitely an Afternoon Tea with Father Christmas I’ll be looking up next festive season!

Accessible toilets is a favourite theme, well, when I say favourite theme I agree with Ordinary hopes in her post Petitioning for What?, in that we shouldn’t even need it to be a theme for discussion (…please do sign the petition though!)!  However on reading this update by Mum on a Mission about her an ongoing correspondence with Cineworld it’s pretty clear that we do need to continue to lobby for greater clarity of standards, as the big service providers still seem to believe the guidance doesn’t apply to them!

On the positive side for loos, it was great to read this fantastic guest post by Brody, Me and GDD about changing places toilets on Mumsnet, with loads of fantastic comments, many from people who hadn’t heard of the campaign before – it’s always brilliant to reach and gain support from people not directly affected by the issues!

Linky Info

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below…. And do check in again next month to read the round up! Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
  3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories and/or the shorter #AccessStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
AccessibilityStories

Not enough space?

Hand sketch of a changing places toilet in the proportions of a car parking space, overlaid on a photo of a car park

Quite often, when discussing changing places toilets with new people, the size of the room comes up, and often becomes a bit of a sticking point!

To be fair, in isolation, at 12 sqm a changing places toilet does sound quite large, particularly if you are comparing it to an individual toilet cubicle, or even a standard accessible toilet.  But then that’s one of the main reasons many people need a changing places toilet rather than one of the other type of toilets, simply because they can’t get in to the smaller rooms!

(Follow this link to a post I wrote previously about how accessible the average accessible toilet is).

When people get stuck talking about the floor area a changing places takes up, it sometimes feels as though they forget that all toilets take up floor area (and cost money to install!) – even the inaccessible ones!  But they do take up space, and quite a lot of it!  If you visualise a standard women’s toilets for example, the cubicle is just one element, there’s also the space needed for the vanity unit, with bank of wash hand basins, and the circulation space in between the two.  And then you’ll also have the mens loos, at least one standard accessible toilet (hopefully!) and perhaps (depending on the building type and location) a baby change or family room too, which is often a similar size to a changing places toilet!

All those other toilets have limited access, whereas a changing places toilet, is very accessible!  Changing places toilets are generally considered the add on, taking up extra space, but I think we are looking at things the wrong way round.

If there’s only space for a few toilets in a venue, why not start with the most accessible and add the least accessible rather than the other way around?

I’m a bit of a numbers geek, so I decided to try and think of spaces that people know really well, to help visualise the area required by a changing places in context with something familiar, and, do you know, one of the simplest of things many of us use everyday is, give or take 0.5 sqm, exactly the same area as a changing places toilet!?

A car park parking space.

Hand sketch of a changing places toilet in the proportions of a car parking space, overlaid on a photo of a car park

Not a blue badge space, or an on street parking space (which are actually a bit longer) or even the slightly more generous kind that some car parks now provide to accommodate bigger modern cars…. nope!…. a totally bog standard (excuse the pun!) minimum size car parking space is 2.4 m x 4.8 m, which is 11.5 sqm in area!

A space most of us take for granted.

Car parks occupy massive amounts of space (sometimes in multi-storey structures or excavated basements underneath buildings which involve reinforced structures, car ramps and all sorts of expensive engineering just to enable us to leave our cars occupying a space while we’re not even there!)!  …. so when the reason given for not installing a toilet in a building or venue (a toilet that most people could use!), is lack of space, I really have to wonder…!

P.s. The above graphic isn’t about adding changing places toilets into car parks, its a comparison of the size of a changing places toilet in context with the size of a space we are all very familiar with!  However it does bring to mind the image of those mobile toilets provided in trailers for temporary events!   So if you are organising an event, please do take note that a changing places toilet does fit in a trailer too, and there are a couple of suppliers who can provide mobile options that you can hire to make your event truly accessible!

 

Accessibility Stories 01.17

A rusty key with title "Accessibility Stories 2017 Linky"

Happy New Year!

A rusty key with title "Accessibility Stories 2017 Linky"

Welcome to the first #AccessibilityStories of 2017!

Apologies for the lack of linky last month, too much going on at Christmas I’m afraid!

My lovely campaigner friend at Ordinary Hopes linked up a couple of posts to my last linky, in November, which are particularly topical as this year has begun with quite a flurry of media interest in accessible toilets!

The first is a Christmas post, The C Word, highlighting how the lack of suitable toilet facilities, meant that her family couldn’t participate in many of the festive activities that many others take for granted.

The second, Struggling to Care, a poignant post setting out what really makes caring for a loved one difficult.

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below….

And do check in again next month to read the round up!

Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box below and add it into your blog post while in ‘text’ mode of your blog editor) or a text link back to my site so people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
  3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
AccessibilityStories



Every day is a broken toilet day

changing places selfie with BBC Look East reporter & cameraman

Well 2017 has begun with a lot of talk about accessible toilets!

I’m so, so, thankful for Anne Wafula Strike speaking out about her horrible experiences due to lack of accessibility on the train.  A culmination of various things, a lack of facilities, a broken toilet, lack of independent access to and from the train, lack of assistance when needed…. lots of layers of accessibility fail.

changing places selfie with BBC Look East reporter & cameraman
BBC Look East changing places selfie

The fact that this has hit the media is fantastic news to me and fellow campaigners, as so many people live similar problems everyday, and I wonder if maybe we’re seeing part of the solution – accessible design – moving into the mainstream forum?!

Toilets of course are not the most glamourous aspect of building design, but, unless you are just whizzing through, they are pretty fundamental to access.  If you go anywhere to work, eat, drink, watch a show or a movie, view some art…. you go there assuming there will be somewhere to go to the loo.  I’m not a big fan of a public loo, but I know I would be quite anxious if there weren’t any available!

I can remember once going to a restaurant (a very small one in London) and when we got there we were told all the loos were out of order, but they had made an arrangement with the pub a few doors down, for customers to use the loo there. A satisfactory short term solution!? But it did feel very odd to leave the restaurant, and your friends, mid meal and go out onto the street!  I remember silly things going through my head, like should I put my coat back on? Take my bag and/or phone?

I also wonder now, would I have gone if I had known that would be the arrangement? Would I return somewhere if it was?

Fast forward a few years (or 10!) and this is now our everyday scenario.

My daughter J is 6 and my son W is 3.  J has developmental & sensory disabilities which mean that she is a wheelchair user and also has continence issues, so wears pads (nappies).

Every day is a broken toilet day for her.  Which means that, if we are out together, then every day is a broken toilet day for all of our family.

Anne Wafula Strike’s experience tells us that there are not enough accessible toilets, or in some circumstances the way to get to those toilets is inaccessible, (e.g. when you’re trapped on a train due to lack of ramp, you can’t just hop off to use one at the next station!) however, even when there is an accessible toilet available, it’s extremely unlikely that we’ll be able to access it.

The typical accessible toilet is designed with a whole host of different disabilities in mind, but the position of the fittings is predominantly to enable independent wheelchair users, those who can stand, weight bear or have the upper body strength to transfer from their chair to the loo.

But what if you can’t transfer on your own to the loo or what if (like J) you need a pad changed and cannot stand up to have it done?

Until recently W had the same toileting needs as J does now, and most places we visited as a family provided exactly the facility he needed.  A changing table.  And, as he was only 2, he fitted perfectly on the changing tables we found.  J is 6.  J hasn’t fitted on a baby changing table for some time, and even if there was a bench large enough to lay her on, she’s also getting to the stage where she’ll be too heavy to transfer without a ceiling hoist, a stage that many many older children and adults are at now.

changing benchceiling hoistIt’s estimated that accessible toilets are inaccessible to at least 1 in 260 people.

There is one toilet in our city centre (Cambridge) that we can use. Only one registered changing places toilet.  In fact we did a little bit of filming with the BBC Look East in there last week! Oh, the glamour of TV!

It’s the only toilet in the city centre that isn’t ‘broken’ to us – but, brilliant as it is to have it available, it’s not in a location you would go.  The only way to get to it is to leave the place you are visiting, eating, viewing and walk to the shopmobility office in a shopping centre car park.  In fact, I do not know of a single place we could go in Cambridge where the toilet is accessible to us.

I’m really keen to understand why there’s not a greater range of facilities in more places. A more inclusive provision in  buildings that people go to, places that people visit.

So if you’re in the building design, construction or management industries I’d be really grateful if you’d complete and share my survey to help me gather views on the accessible toilet guidance available, and any improvements that could be made in design and legislation. (Edited to add: Survey now closed)

I’m looking for feedback from people in all sectors of the building industry, whether you have specific experience or expertise in accessibility or not (in fact the wider the range of experiences the better!).

 

Accessibility Stories (Nov 16)

Rusty old key in a door lock

Thank you so much to everyone who linked up with #AccessibilityStories last month!

Collage of pictures of smiling children how need changing places toiletsThere has been much discussion within our campaign group about why the need for Changing Places toilets has not really reached the conscious of the general public and, when it does, it’s often misunderstood as Brody Me and GDD describes in Sorry for the Inconvenience.  Of course the official Changing Places campaign has made huge headway (from zero provision!) in it’s 10 years, but at still less than 900 toilets in the whole UK, we felt that perhaps us independent campaigner bloggers could shake things up a bit more if we got together!

So at the end of last month Brody Me & GDD rallied a group of bloggers to publish a wave of posts about the lack of fully accessible toilets, in the hope that a surge of posts, coming from a range of perspectives, might break through the social media noise and reach new people.  And I think we succeeded, at least to some extent!

The name ‘Changing Places’ can be a bit confusing and abstract from peoples lives.  Having a mix of parent bloggers, who don’t normally write about toilets (well some of them do, but maybe not always about changing places!), might make the story more relatable to people who don’t need them.

We decided on Halloween as a date to publish and decided on the theme of #phantomloos (as standard accessible WCs just being an illusion of accessibility to many of us!).

Many of the bloggers hooked up to last month’s #accessibilitystories and there are so many amazing posts I figure it’s just better if you hop over there and have a browse!  I’ll just pick out this storyboard style post by Little Mama Murphy which gives such a clear description of what we are talking about and why, that surely it’s just obvious there should be more changing places!  You can also check out this #PhantomLoos storify a try to capture the mood around the hashtag on twitter.

The most exciting thing to come of the flurry of activity was that a BBC journalist contacted a number of us who had taken part as she was writing up this fantastic article, When does accessible not mean accessible?, published last weekend, on #worldtoiletday!

The linky wasn’t only about toilets though!

Rainbows Are Too Beautiful linked up this beautiful, balanced and heartfelt open letter to Tess Stimson in response to an article she wrote about ‘disruptive’ behaviour in public places.  Rainbows Are Too Beautiful explains how precarious it can be as a family trying to walk that line between tolerance and intolerance and how the limitations society places on what is acceptable can deny people access to typical family life. Have a scroll through the comments to see a thoughtful response from Tess Stimson herself.

And finally A Hunter’s Life posted a great list of their families favourite products! I’m always excited to share great inclusive product ideas, especially those (usually the mainstream products) that don’t come with the higher ‘special needs’ or ‘disability’ price tag!

The linky for November is now open and I’m really looking forward to reading some fab posts from friends old and new!

Please read the guidelines and then get linking below (the linky will be open for 2 weeks)!

Rusty old key in a door lock

Guidelines:

  1. Link up to 2 posts each month (old or new)! I don’t have a badge, but it would be lovely if you could add a text link back to my site so people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
  3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.



Why should we?

Changing Places toilet selfie

Why should we install a changing places?

I can understand that many people have not heard of Changing Places toilets. I understand there’s a valid argument that venues just don’t know about them.  However once they do know….?

I worked in architectural practice up until 2010, just after the guidance was entered into the British Standards (BS 8300), and I honestly hadn’t thought about the building regulations ‘standard unisex accessible WC’ not being adequate for all disabled people.  Don’t ask me how I didn’t know as it seems so obvious now, but it just hadn’t occurred to me what people would do if they couldn’t get onto the loo on their own ! How could someone help to lift them in that little room and without any hoisting equipment!?  And what if you were not a baby (maybe you’ve not been a baby for decades!), but wear an incontinence pad and need assistance to change it? Where would you lay down?

Changing Places toilet selfieIt wasn’t really until my daughter was growing too big for baby changing tables that I began to wonder if I was missing something, and of course when I began to look around I found the Changing Places campaign.  A campaign that had grown out of the frustrations of a determined bunch of parent carers deciding to take action about this lack of provision.

I was excited to find that they had secured a pretty comprehensive entry in BS 8300, recommending the type of buildings these facilities should be installed in.  And there is also reference to this BS guidance, and to the Changing Places Consortium, in the Building Regulations relating to building accessibility (Part M).

However it soon became clear there really weren’t that many of them actually installed.

Ok so it’s a new standard?  There will be loads in the pipeline right?

Now that the need has been identified and quantified in BS guidance, there will be lots of new buildings automatically including them, and lots of existing venues will start installing them…. right?….right!?  Erm….no, not really.

Over the last year or so I’ve gotten to know a number of campaigners pretty well, several of them are fellow SWAN UK members with children with complex undiagnosed conditions, some have older children and some are adults who need the facilities themselves.  Unfortunately their experience has been negative on the whole.  Of course there are some exceptions and some lovely positive stories of venues, on hearing of the need, step up and even enthusiastically take steps to ensure a changing places toilet is installed in their new building or refurbishment.  Some see the benefits of inclusion straight away without much, or even any, persuasion.  Two such projects that spring to mind are Longdown Farm and Cornwall Services – both fantastic examples of how it should be, how I’d have expected it to be.

However the far more frequent response seems to be: “not our responsibility”.  Even when confronted with the fact that their disabled customers & carers have to leave early, risk falls & back injury, lay on toilet floors or even not come at all, the fact that changing places are not compulsory, that there’s no minimum requirement to cater for ‘our kind’ of disability, means that venues see changing places as an extra. Something over and above what they need to provide.  Their competitors haven’t had to do it so they don’t want to be the ones who have to spend the extra money.

I have to say I have a little sympathy for this.  The changing places standard is significantly bigger than designers and developers are used to as an accessible toilet, and of course floor area = cost.  Without clarity of who should install them, and in this financial climate, I can sort of understand individual organisations backing away from responsibility.  My feeling is that there should be a review of the whole ‘suite’ of sanitary facilities we have in our regulations as minimum standards.  I think there’s opportunity to have more inclusive options, for smaller family friendly venues for example, where perhaps the adult and baby changing areas are not put in separate rooms but a single family toilet area is installed, so the room will be used by a greater number of customers and business’ will feel there is more ‘value’ in if for them? But that’s another blog post I think!

As I say, these facilities seem to be viewed (by most?) as an ‘extra’, as something for a minority and not their responsibility to cater for, so thought I’d look at some figures I could find online which (I think!) illustrate clearly that’s not the case (although even if it’s just one person that’s being excluded, isn’t that one too many!?).

The Changing Places Consortium website tells us there are over ¼ million users in the UK who need a greater than the average accessible toilet, in a population of 65.1M (ONS).

So that’s (at least!):

1 : 260 people

1 in 260 may not sound like a huge number of people on first glance, but just to put that into a bit of context, here are some building venue capacity stats:

Blackpool Tower Ballroom (who do have a changing places toilet I must add – #IncLOOsion!) can accommodate:

  • 900 people for a banquet (statistically 3.5 changing places users per banquet),
  • 550 for a dinner dance (statistically 2 changing places users per dinner) ,
  • 1100 for theatre performance (statistically 4 changing places users per performance).

Wembley Stadium (who, again, do have a changing places toilet) has:

  • 90,000 seats (= statistically 346 people per match needing CPs)
  • 2,618 toilets (including 1 Changing Places Toilet!) in this one (granted, very large!) venue, yet there are only *895 Changing Places in the WHOLE UK!

For an area with such high density of entertainment & tourist venues, the west end of London has particularly poor provision of changing places, and I don’t mean to single out these two over any other (because they ALL should have one) but, for example:

The Royal Opera House auditorium seats:

  • 2,256 people ( = statistically 8.7 people/performance needing CPs)

The Odeon at Leicester Square has:

  • 1683 Seats (= statistically 6.5 people/screening needing CPs)

So, some of my questions to businesses who are questioning whether they should have better accessible toilet facilities in their building or venue are:

  1. Do you have toilets for your other customers? Why would you expect our family to leave your venue to find a toilet somewhere else when you don’t expect other people (who are most likely more mobile!) to do this?
  2. What is the capacity of your venue? If it’s greater than 260 people, then statistically at any one time there may be someone who needs a changing places toilet using your service.  And they are most likely to be there with friends and family (or often at least a carer), and if they have to leave early, they’ll all leave!
  3. Do you see yourselves as an accessible building/venue? Then shouldn’t that accessibility extend to all users?

I’m not suggesting tiny coffee shops should be expected to provide fully accessible facilities (although of course that would be lovely and very inclusive!), and perhaps some people may say I am too close to the issue to see it objectively, but I am really struggling to understand why there is any debate as to whether meeting this need should become a minimum requirement in larger publicly accessible buildings, ones that provide toilets for everyone else!

*total figure in November 2016

Accessibility Stories (Oct 16)

Rusty old key in a door lock

Thank you so much to everyone who linked up with my first ever #AccessibilityStories linky last month!

Perhaps it’s a reflection on the circles I move in (the toilet obsessed!), that several of the blogs linked were posts about changing places toilets.  A lack of true accessibility and inclusion, affecting so many families (including ours) being able to take part in ‘normal’ activities across the whole country!

Brody, Me & GDD beautifully describes the grim realisation as her boy grows that there is very little toilet provision for older children and adults who need assistance in the loo, and comes to the conclusion that she must do something about it! “We can choose to be affected by the world. Or we can choose to affect it

Mum On a Mission describes so eloquently the heartbreak of her and her son having to ‘make do’ in an unsuitable ‘accessible’ toilet in The future I’m trying to Change and, on the Selfish Mother, she talks of the struggle of feeling unheard and unvalued, when explaining to business’ how excluded our families are made to feel, in Why are Some Customers More Valued than Others

Ordinary Hopes has written so many amazing posts about how the lack of changing places toilets limits her son’s independence and opportunities. A crucial point she makes is that her son IS continent.  Changing places toilets are not only necessary for those who need to change nappies or pads.  For her son it’s not an issue of waiting until he gets home to change a pad, or grinning and bearing a pad change in an unsuitable space – he needs the use of a hoist to be able to use the loo.  To be able to use the loo like his friends and stay out and have fun, rather than being ruled by his bladder. He is very much aware of this inequality in provision and illustrates this with his lego character Tina. However, some venues do really live up to their inclusive image and this lovely positive post about the Eden Project describes just what a difference that makes!

Little Mama Murphy linked up two posts this month about her amazing home adaptations project! Another issue so close to my heart! ‘Disabled adaptations’ can be such a confusing, limited and expensive process. Many of us watch programmes like DIY SOS and wish the team would miraculously appear and perform an amazing inclusive family transformation of our home.  Well Little Mama Murphy has managed just that! With a team of the most brilliant friends and family members, donating their time and skill to carry out the #BigBuild4Hugh! True community spirit!

Rainbows Are Too Beautiful (I love the title of this blog!) reminds us that not all accessibility needs are physical.  Sensory issues can make a place inaccessible to many people too, and she describes how her family often have to reccy a venue in advance of visiting as a whole family in Caution at the Aquarium

You can read all the posts linked so far on my Accessibility Stories Pinterest board.

Rusty old key in a door lock as an analogy for difficult access

The linky for October is now open and I’m really looking forward to reading some fab posts from friends old and new!

Please read the guidelines and then get linking below (the linky will be open for 2 weeks)!

Guidelines:

  1. Link up to 2 posts each month (old or new)! I don’t have a badge, but it would be lovely if you could add a text link back to my site so people can find the linky and read the other blog entries
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
  3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.



Shouldn’t all homes be inclusive?

Originally posted on Clos-O-Mat & Building Talk

Before my children came along and I became a full time parent carer, I worked in architectural practice.  Most of my design experience has been in home design, from individual house alterations to large scale newbuild and refurbishment projects.

Rough sketch of a house planI have to say I particularly enjoy the challenge of getting stuck in to an individual home project.  It’s extremely rewarding to see how much of a difference a bit of lateral thinking, and sometimes just a few small changes, can make to the way a house works for a family.  Perhaps by releasing a bit more breathing space through changes to the layout, adding better storage to make rooms feel less cluttered or maybe extending out or up to add extra rooms.

For me it’s important to take a broad view, think about how a family uses the spaces now, and in the future.  Are the room functions in the right places?  Is there any under-utilised space? Can circulation be simplified?

Becoming a mum to my little girl with developmental disabilities has reignited my passion for encouraging more widespread consideration of accessible and inclusive design in home design, as well as places, spaces and products.

I’m also a keen advocate of sustainable design (a much, probably over, used term!), and am passionate about improving the sustainability of our new and existing homes.  But by this I don’t just mean energy efficiency, that is just a part of what good sustainable design should be.

Sustainability is also about longevity, cost effectiveness and minimising waste.  If a home is built with flexibility in mind from the start, that seems to me to be fundamental to the sustainability ethos – in that it will last longer, cost less over the lifetime of the house and be changeable without being wasteful.

Designing a home for a whole lifetime’s needs (to standards like lifetime homes), will make subsequent alterations as unobtrusive and cost effective as possible and, quite apart from anything else, if you reach a time in your, or a loved one’s, life when greater accessibility becomes more critical, invasive building work is probably the last thing you will want to think about!

Accessibility also nicely slots in to the health and wellbeing aspect of sustainable design – why not make sure our homes more welcoming to ALL of our friends and family whose needs may be different to our own (perhaps granny with a walking aid, or your newly crawling niece or nephew?).

However for some reason inclusive design still doesn’t seem to be seen as a mainstream concept.  There’s a perception that accessibility is only for wheelchair users. House design is either ‘wheelchair friendly’ or not, and there really is an acute shortage of the ‘wheelchair friendly’ variety.

It’s widely acknowledged that there is a housing crisis in the UK at the moment, with particular shortages in the south east of England and this compounds the shortage of accessible homes.

EJ in her standing frame facing her baby brother in a bouncerSomehow the idea that inclusive design (or even better accessible or universal design) is of benefit to us all, isn’t being embraced!  I guess if you are young and fit it’s easy to be oblivious as to how our environment and buildings can make life difficult (or even impossible) for some people, but if you get injured and have to use crutches or a wheelchair, or even try to push a pram or wheel a large suitcase around, the environment can suddenly appear very inhospitable.

One of my dreams is to see inclusive design become ‘everyday’, for there no longer to be any need to differentiate inclusive design as a separate, niche, concept.  I want to see fantastic examples of accessible homes featured on TV makeover shows, and in the homestyle magazines, so that disabled people and their families are presented with inspirational examples of how fantastic their homes can be, and (perhaps more importantly) so that non disabled people see inclusive design as an interesting and exciting design approach for life-long happy homes – to break the perception that accessibility is all ugly plastic grab rails and old fashioned stair lifts.

I want to see a celebration of design that is flexible for a variety of needs, design that not only works for you, your children and your grandchildren but that is stylish and ideal homes worthy!

Good inclusive design should allow everyone to be able to participate as fully with family life (as they want to!) as naturally as possible – what can be more valuable than that?

Keep Calm and Carry On Linking Sunday