Inclusive Chic Roundup: September 18

A re-blog from my fantastic #inclusivechic co-host, Vicki of Wheel Chic Home – Our first roundup!

text graphic: #inclusivechic follow @theinclusivehome & @wheelchichome

 

“Last month, Vaila from The Inclusive Home and I started a new Hashtag across Instagram, Twitter and Pinterest called #inclusivechic

We set up the hashtag to start conversations around inclusive, accessible or disabled design that we love. This could be things we have in our own homes, or great architecture or design we’ve seen that helps someone in their wish for a dignified, independent life. We’ve suggested a theme each week for the posts and we’re thrilled with the response so far, and we hope it’ll continue to grow!

We don’t want to pigeon-hole this hashtag as for disabled people. There’s great inclusive design everywhere – that can be used by those with or without disabilities. We want to encourage people to look around them and find things that everyone can use and be aware of. So we want to raise awareness, have a little fun and also we’ll have some prizes coming up in future months so keep posting!

We’re also so pleased with the discussions we’ve had on the hashtag, from the best ceiling hosts to wheelchair front wheel adaptations, we’ve been sharing hints and tips so we’re all learning as we go.

We’ve had some great posts and ideas from the #inclusivechic crowd on Instagram and we wanted to share some of those in a monthly round up. We’re a little late on this first round up but we’ll catch up this month!

Here’s a selection of some of our favourites in the past few weeks, although we’ve loved all the input you’ve given us!

First up: this beautiful inclusive bathroom at the St Ermin’s Hotel in London, designed by MotionSpot. Anyone would be happy to use this room, disabled or not. It’s fully inclusive!

 

Next up is a lovely photo from Kezzabelle5 with a picture of Ashton enjoying bathtime in a fabulous and safe bath chair surrounded by colours and lights. What’s not to love about this?

Next up possibly the most brilliant stair lift I’ve seen up to a beautiful home in Cornwall over looking sea. Cornwall’s small cottages and fishing villages with steep hills and uneven steps isn’t the first thought for an accessible home but that didn’t stop On The Mother Hand from setting up home here and getting a marine grade lift installed. Brilliant – and I bet it’s also useful for sending up heavy shopping too!

This in progress bathroom from Wills_House is lovely, the oversized mirror and smart navy tiles with white grout work well with the grab bars and accessible sink. I can’t wait to see it finished!

We’ve also been discussing Architecture this month and this example of a wheelchair ramp wrapping round the steps at Weston Park Museum in Sheffield is brilliant. Sometimes a wheelchair user has to go round to a different entrance to everyone else, even having to wait for staff to let you in making you feel like an inconvenience, but this ramp let’s everyone be together up and down to the museum. I love it, and thanks to A Wheelie Great Adventure for sharing it with us.

We’ve had so many posts to choose from, so it was really tough to narrow it down, please go and check out #inclusivechic and join in, share your inclusive design with us.

That’s it for this month’s roundup – see you next month!”

Access Linky: May 2018

a rusty key with #accesslinky written below

Hello! Isn’t it lovely to finally see Spring arrive!

Welcome to my blog link-up for sharing posts with ideas and experiences (good and bad!) of physical or sensory accessibility of buildings, places, spaces, products and/or activities!

Access Linky social media graphic

I’ve had a hectic few months and I feel like I’m neglecting my own poor blog, so I’m extra happy to be able to read through and share the fab posts linked up to #AccessLinky!

Linky Round Up:

There were two snow themed posts linked up last month! That may seem a bit out of season, but it’s not so long ago we saw the ‘beast from the east’ despite the lovely warm weather we’ve seen since!

The first by Rainbows Are Two Beautiful is a genius idea! Helping her autistic son to enjoy playing in the snow without triggering his sensory sensitivities by making ‘warm snowballs!’

The second by Life of an Ambitious Turtle, describes her daughter’s experience of Accessible Skiing with a Visual Impairment! It sounded brilliant, and look out for her second instalment, accessible skiing for a wheelchair user!

Ordinary Hopes shares her disillusionment with the response, and The Offer, from one of our well known Supermarkets about their attitude to installing changing places toilets (although this particular supermarket is not the only one to disappoint on this issue!).

And finally, two posts both relevant to my own obsession over the last few weeks!

I attended Naidex last week for the first time to give a talk on inclusive home design… I’m more of a keyboard campaigner and sketcher, so it’s something pretty much out of my comfort zone… but reading this post from Life of an Ambitious Turtle on the lack of accessible homes and Senseless Social Housing Policies affecting working age disabled people, it reinforces to me how important it is to keep talking about this!

While Wheelscapades wrote up this brilliant review of her visit to Naidex in 2017!  It’s a great (and unique!) opportunity to see and compare accessible and inclusive products, see lots of design innovation and to meet loads of like minded people! It’s certainly going into my diary for next year!

 

Inclusive Home

The linky will be open for 3 weeks!

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image above and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
  3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.

….and don’t forget to check in again next month (1st of the month) to read the round up, and link up again!


The lengths this architect will go to

Photo of Vaila on the loo (camera positioned discreetly!)

Dear Architects of the UK (and the rest of the world),

I want to talk to you about toilets.

I know the loos are not the most glamorous aspect of building design, but they are kind of fundamental aren’t they?

Would you ever dream of designing a publicly accessible building or place of work without one?

And of course any new building or refurb would have accessible toilets wherever there are toilets too?

But did you know that regular ‘wheelchair accessible toilets’ (doc M style toilets) are NOT accessible to all wheelchair users or even all mobile disabled people?

Photo of Vaila on the loo, with text: I'm getting my pants down 4 equality, Looathon, 11 May, Bathstore, Bathstore, Baker St London

My daughter is one of those wheelchair users, which means our whole family’s movements are dictated by access to the most elusive type of toilet in the country.

In my home city of Cambridge (a vibrant, tourist destination) there is only one, registered changing places toilet in the city centre. Yes, just one toilet in the whole of Cambridge that my daughter can use, other than the toilets at her school and a toilet at the hospital on the edge of town.

Playmobil family, to represent our family, on a woodland pathIn London you can count on one hand the number of changing places toilets in the West End.

Therefore my family cannot visit the West End together.

We CAN visit the 2014 Stirling Prize winning Everyman Theatre in Liverpool, but we CAN’T visit the most recent Stirling Prize winning buildings (judged to be the best buildings of those years!?), or at least our visit would be hugely compromised, compared to other visitors, as we would need to leave as soon as it was time to use the toilet.

I carried out a survey monkey last year aimed at architects and building designers.  Unfortunately (despite many regional RIBA chapters sharing it for me in their newsletters) I didn’t get a huge take up, perhaps because it’s not a very attention grabbing topic.

However, I think the results I did get gave some insight into why we still only have just over 1000 changing places in the whole UK.

Extract from survey showing bar chart of responses illustrating 54% of architects said no the question about having installed a changing places toilet

Of the…

…71 ARCHITECTS SURVEYED, AS MANY AS 54% HAD NOT INSTALLED A CHANGING PLACES TOILET…

…and those that had were mostly in community, care or educational settings (which are obviously very necessary), but very few in commercial installations at all, places where families like mine would like to be able to ‘go’ like other families (museums, cinemas, bowling alleys, theatres, department stores etc).

Personally I would love to see better guidance and I think there is mileage in there being more flexibility in the design of toilet standards in general, and that seemed to be echoed in many of the comments I received in my survey.

(I want to see some formal research on this topic, so if anyone can help in that department do get in touch!)

Following on from the success of her fantastic #LooAdvent campaign at christmas, amazing changing places champion, Sarah Brisdion, has organised a #Looathon with the great people of Bathstore in Baker Street on 11th May!

I deliberated about joining in, I am not an exhibitionist!  However my first blog post on this topic was over 2 years ago, I’ve spoken to anyone who will listen! Yet still we have only one toilet in my home city and a handful in central London. And so, I have decided to join Sarah and a whole host of other amazing accessibility champions, volunteering to put ourselves in an undignified position because our built environment robs our friends and relatives of their dignity daily…

…AND SO I FIND MYSELF GOING TO THESE LENGTHS TO TRY TO RAISE AWARENESS, WITHIN MY OWN PROFESSION, ABOUT THE EXCLUSION MY FAMILY FACES IN MOST OF OUR PUBLICLY ACCESSIBLE BUILDINGS…

I would like to extend an invitation to any architects, the RIBA, the building design media & building professional bodies to come along and meet us to get a first hand view of why we need this change in attitude to toilet design!  Also there will be a mobile changing places toilet at the event, a Mobiloo, so you will be able to see what is possible, even in the back of a van!

 

Letters to my Daughter

Access Linky: March 2018

a rusty key with #accesslinky written below

Welcome to the March 2018 #AccessLinky!

A blog link-up for sharing posts with ideas and experiences (good and bad!) about physical or sensory accessibility of buildings, places, spaces, products and/or activities!

Access Linky social media graphic

I hope everyone is managing in this cold snap!

Hoping the ‘Beast from the East’ will soon be off back to it’s lair until next winter!

Linky Round Up:

The first in the round up is very appropriate for this week’s snow (and the inevitable springtime showers yet to come!), Rainbow’s Are Too Beautiful linked up these top tips for autistic kids in wet weather!

It was great to hear from some new linker uppers, and still on the theme of getting out and about, Sensational Learning with Penguin wrote about their visit to a National Trust property and gardens at Scotney Castle in Kent.  The NT is a big favourite of our family too, especially those with large grounds to explore and somewhere to buy cake! (The old houses are not usually so wheelchair accessible!).

Another great set of tips for families was Starlight and Stories’ ideas to help autistic kids to navigate the sea of homework.

Perhaps seemingly a bit off-piste for this linky, is an issue that’s been a big focus in the news, is the rising momentum to reduce plastic waste.  Great! I’m all for reducing our environmental impact, but it seems the poor plastic straw is getting the brunt of the blame for this!  Wheelscapades wrote this great piece, The Last Straw, explaining the wider context of the calls to #banthestraw and it’s impact on disabled people, which inspired me also to write don’t vilify all the plastic.

World of Gorgeous Grace joined the linky highlighting the current Blue Badge scheme government consultation, with some examples of her own families experiences, and urges anyone with experience of the need for greater access to parking to take part!

Also on the theme of government services, The Long Chain writes of the Postcode Lottery that seems to exist when it comes to accessing appropriate advice, services and equipment.  Is a more effective centralised code of practice required to make sure all children receive what they need regardless of location within the UK?

Finally, Life and Other Stories Blog, writes To Know Me is to Understand Me in surprise at some statistics about how many people don’t believe they know someone with a disability! How is disability to be accepted, and access and inclusion become the standard, if people don’t even see it!?

Inclusive Home

The linky will be open for 3 weeks!

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image above and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
  3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.

….and don’t forget to check in again next month (1st of the month) to read the round up, and link up again!


All I Want For Christmas Is A Loo

As it already appears to be Christmas advert and Christmas song season, it seems fitting to re-release this brilliant video from last year!

The amazing Sarah of Hadley’s Heroes came up with the idea to raise some awareness of the lack of changing places toilets whilst spreading some festive cheer, she rallied her brilliant friends and the collective of parent carers at My Changing Place and pulled this together just before the big day last year!

This year we’d like to try and spread the message for greater inclusion even further, in what better way, in the festive season, than in the medium of song!? Please watch and share and encourage all venues with customer and visitor toilets to have a think about exactly how accessible they really are!

(If you keep a lookout you’ll see J’s wee face appear a couple of times 😀 )

(Unfortunately the My Changing Places website is no longer active, but if you want to find out some more about the need for changing places toilets you can have a read of some of my earlier posts, for example check out the toilets illustrates why ‘disabled toilets’ are not for all disabled people and some other earlier posts here.)

You can also sign this petition to lobby government to make changing places legislation more definitive!

Keep Calm and Carry On Linking Sunday

Access Linky Nov 2017

a rusty key with #accesslinky written below

Hello and welcome to the November Access Linky!

Only 1 day late this time!…. Sorry everyone… excuses, excuses but it’s been a hectic couple of weeks between half term, several important birthdays, anniversaries (including the blog!) and halloween!

Access Linky social media graphic

Thank you so much to all the joiner uppers last time, there was a fab variety of posts and from a great range of bloggers too!

Too many to highlight individually in the round up this time (which is amazing!), but you can see all the posts that have been  linked up previously here on my #AccessLinky Pinterest Board – Do hop over and take a look!

Round Up:

To start the round up is a fantastic post by A Blog About Raising My Autistic Son about accessibility in general terms, and how good strategies can impact much more than just the intended user group, as she looks back at the phenomenon of the curb cut effect in Accessibility – It’s Good For Everyone

The fab Wheelchair Chic Home linked a couple of posts, and I’ve picked out this one about How to make your home more accessible for your guests (since being about home design it’s right up my street!)! Some great tips here if you have any elderly or disabled friends or family coming to visit, especially over the festive period (it is November now, it is ok to mention Christmas, isn’t it!?)!

Also on the theme of home, I found this post by The Sun Will Come Up really moving. Home is Where the Heart Is and moving home can be stressful and emotional at any time, particularly from a family home, but even more so with the added restriction that your new home needs to be more accessible.  Finding an accessible home is not easy anyway, and family sized ones are the hardest to come by! We need more choice in inclusive housing! Have I mentioned this before? 😉

Ordinary Hopes discusses a topic that I’ve been wondering a lot about myself recently, about the narrow perception of what a wheelchair user can and can’t do.  In the context of legislation for example, I really wonder how much consideration is given to the fact that Some Wheelchair Users Do and Some Don’t self transfer!?

And to finish my summary, a super heartwarming post by The Long Chain about What a Difference a Drug Makes.  Not on the face of it a blog about accessibility perhaps, but actually embodying very fundamentals of access! Access to the right treatment and medication is access to living life you your fullest! Loving that gorgeous photo of Benjamin smiley and wide awake!

Please do check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!

Linky Info:

The linky will be open for 3 weeks! Share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces, products and/or activities below…. and don’t forget to check in again next month to read the round up and link up again!

Inclusive Home


Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image above and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
  3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.


Access Linky Oct 2017

a rusty key with #accesslinky written below

Huge apologies for the lack of linky last month!

Those pesky school holidays messed up my schedule so I decided I would wait and have a relaunch today on the 1st anniversary of the linky and to change the linky date to the (much easier to remember!) 1st of the month!

Share your accessibility stories on Access Linky. Open from 1st of the month for 3 weeks

Thank you so much to everyone for joining in last time, there was a fab variety of posts!

Round Up:

A number of the posts linked last time addressed the wider aspects of inclusion, and what that means for their families. The Long Chain picked out the Five Things I’d Change to enable greater inclusion for her family and Ordinary Hopes gives a heartfelt picture of how the environment & society impacts her son’s life in  Children Should Not be Scared to go Out.

Things are changing and businesses are beginning to show greater awareness of access issues but this can sometimes feel like tokenism as Mum on a Mission points out in her post Are Physically Disabled Children Invisible?

Little Mama Murphy shared a lovely post about How to Talk to A Disabled Child! Yes! This is all it takes!

As part of her #SEND30DayChallenge (which I am attempting to complete too… albeit VERY slowly!), Mum on a Mission highlighted 10 Things You Don’t Know about Changing Places Toilets – although many readers of this series will know some of these as Changing Places Toilets is one of my regular topics!

It was brilliant to see a number of reviews focussing on the accessibility of places and venues! Wheelescapades reviewed on of our own family favourite places Wimpole Estate – Down on the Farm. Really interesting to read someone else’s perspective on somewhere we know so well!

A Wheelie Great Adventure reviews their experiences of a family trip to the coast in Tales of Birds, A Beach and A Bomber and Life and Other Stories’ shared a fab post written by her daughter, My Day Out by Cerys Giles.  Great to hear from the next generation of access advocates!

Finally Rainbows are Too Beautiful gives some really helpful tips for those who find it a challenge to eat out with younger children and/or people with neurodivergent conditions in  Tips to Take our Autistic Kids to Dinner

Please do check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!

Linky Info:

The linky will be open for 3 weeks! Share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces, products and/or activities below…. and don’t forget to check in again next month to read the round up and link up again!

Inclusive Home

Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image above and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
  3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.

Accessibility Stories 07.17

a rusty key with #accesslinky written below

Thank you so much to all the linker uppers last month!

Apologies for running a bit late this month. The end of term and start of the school summer holidays have made their impact on my time to blog! I suspect many of you will be in a similar boat!?

Round Up:

Talking of holidays, last month Rainbows Are Too Beautiful shared an absolutely lovely little movie by @bobscartoons in her regular Wonderful Wednesday feature.  Family holidays can be daunting at the best of times, but when you have access and sensory considerations to make too, it can become a mission and a half!

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

There were also a number of posts on inclusion last time.  Both good and bad examples!

Rainbows are Too Beautiful writes a lovely message to say Thank You Little Girls after glimpsing some natural moments of acceptance and inclusion between her little boy and his classmates at his school assembly.

Raising My Autistic Son shared a post about her son’s experiences of trying to Access After School Activities and The World of Gorgeous Grace enthuses about the contrast she’s experienced in the holistic approach to inclusion after moving to a new area in her post: This is how to do Inclusion

However The Sensory Seeker speaks of a disappointing approach to inclusion at her son’s school in Not Being Different

Disabled parking, or blue badge parking, is a topic I keep meaning to write about myself, because there still seems to be a lot of misunderstanding about why it’s needed and what impact the lack of parking can have.  The Long Chain explains just what this means for her and her family in This is A Disabled Parking Bay

And finally, my fantastic campaigner friend Lorna has decided to dabble in the world of blogging! Her first post about changing places toilets Even our Hospital Doesn’t Have a Toilet That We Can Safely Use was published in the #HPEveryBody series on HuffPost UK! Please read and sign her petition for #ChangingPlaces Toilets at the end of the post!

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!

Inclusive Home

Info on how to join in below:

Linky Info:

I’ve switched over to Inlinkz for the linky this month as I think it’s a bit more user friendly, hope you think so too!

The linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces, products and/or activities below….

And do check in again next month to read the round up!

Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image above and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
  3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.


Accessibility Stories 06.17

a rusty key with #accesslinky written below

Thank you to all those who joined the linky last month! I hope you all enjoy reading this little round up!

Round Up:

There were two fantastic posts on communication linked up last time.

I absolutely love this one by Little Mama Murphy about the training session she attended by Jo Grace about Communicating Without Words.  I had happy tears running down my face reading it. I LOVE the concept of ‘sensory being’ and ‘literary being’! It feels just right to describe the differences between my EJ & EW in that way!

Rainbows are Too Beautiful gave a shout out to the upcoming Singing Hands DVD  which also sounds fab! I did some baby and toddler singing and signing classes with both of mine when they were young.  I’ve been a bit lax with my makaton recently without the structure of the class to keep me motivated, so it would be fantastic to have a fun DVD aimed at an older audience!  Music is definitely key where it comes to engaging EJ!

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

When it comes to getting around on wheels, I think there’s sometimes a misconception that ‘everywhere’s accessible these days’, but that really isn’t true, even some of the really fundamental stuff in newly refurbished buildings, as Ordinary Hopes highlights in her post Just Because Daleks Can Do Stairs

Mum on a Mission sets it out in black and white how society is forcing people to wear nappies if they want to get out and about, due to a lack of understanding and action on changing places accessible toilets (from legislators, designers, developers through to service providers) in My 8yr Old Isn’t Potty Trained and It’s Your Fault

It really seems ridiculous that some people’s outings revolve in detail around where they can go to the toilet, so Ordinary Hopes wants to say Thank You Exeter Services for acknowledging the need and acting upon it! As Ordinary Hopes says, it’s not only enabled her and her son to go out, but also to become customers and spend their money with them!

Speaking of customers, Brody Me and GDD linked up her post on Products SEND Parents REALLY want! Retailers are missing a market in other ways than just getting their customers into their shops or onto their websites, in that there’s a whole market out there for useful, comfortable, (affordable!) and well designed products for disabled children and adults! What can you add to her list?

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!

Info on how to join in below:

Linky Info:

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces, products and/or activities below….

And do check in again next month to read the round up!

Guidelines:

    1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
    2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
    3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
    4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
Our Inclusive Home



Accessibility Stories 05.17

a rusty key with #accesslinky written below

Thank you to all the linker uppers from last month!

Round Up:

Starting the round up with a couple of neurodiversity posts (access isn’t only about ramps and lifts!)…

Rainbows are too Beautiful wrote about an experience a friend had had at an entertainment venue which prompted her to say, yes! Yes He is Perfect… AND he has a Disability!

The World of Gorgeous Grace speaks about the need for better advice and access to services around learning disability, as she reflects on GG’s Learning Disability Journey.

Picture of a rusty key saying: Share your accessibility stories #AccessLinky

Wheelchair Chic Home joined the linky with a fantastic Top 10 House Buying Tips When You Have Mobility Issues! This is definitely one to share with anyone looking to rent or buy an accessible or adaptable home!  If only the agents & developers understood the value in these features and marketed accessible homes properly so people could find them (and people might build more of them!)!

Another 10 was shared by the Firefly Community: Accessible Toilet Campaigners: 10 famous faces! So lovely to learn more about the people behind the campaigns, bringing a huge variety of experience and expertise to the table (or the bench?)! Really honoured to be included in the list myself!

And a fellow Firefly famous face, Rachel George of Ordinary Hopes linked a couple of her fab posts last month too.  The first, questioning how horrified people might be if non-disabled children (or adults!) were forced to wear nappies/pads! in her post: Some Things Are Just Wrong.

In contrast, Ordinary Hopes, also shared a most fabulous accessibility story, One Perfect Day, made possible by Cornwall Accessible Activities Programme in conjunction with Mobiloo (a charity providing mobile Changing Places Toilet facilities) – real inclusion! Just how it should be!

I hope you’ll check in again next month to catch up with the blog posts in the round up, and bloggers I hope to see lots of you again this month and *meet* some new people too!
Info on how to join in below:

Linky Info:

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below…. And do check in again next month to read the round up!

Guidelines:

    1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
    2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences (use the hashtag #AccessLinky in your comment)!
    3. It would also be amazing if you could share your post (using the hashtag #AccessLinky) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
    4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
Our Inclusive Home



Accessibility Stories 02.17

A rusty key with title "Accessibility Stories 2017 Linky"

Thank you so much to all those who linked up last month!

Round Up from last Month

At this time of year many of us are thinking about booking our summer holidays, however for families with physical and sensory access needs, staying away from  home can be stressful! It was lovely to read this positive holiday experience by Rainbows Are Too Beautiful.  Particularly interesting for us as both my kids love being outside, especially EJ who thrives on the immersive sensory experience nature provides (the light and shade, the feel of wind and rain, the differences in sounds, smells and even tastes) so a forest holiday would be ideal for us, and a holiday home with a safe outside space would be perfect!

A rusty key with title "Accessibility Stories 2017 Linky"A few of the posts last month were about how just getting out of the house can be a mission, never mind going on holiday!  In this aptly named post, Project Get Out of the House, Orange This Way determines to start a new #wheelygood resource for Devon and Cornwall to help visitors and locals alike to find wheel friendly places & activities!  In Where Were the Good People, Ordinary Hopes asks why people stand by and allow others to struggle, and even become victims of bullying behaviour, sometimes in circumstances where a little thoughtfulness or a kind gesture could easily make all the difference.  While on the other hand, Raising a Superhero tells of a lovely Christmas outing where inclusion was at the heart of the experience and is definitely an Afternoon Tea with Father Christmas I’ll be looking up next festive season!

Accessible toilets is a favourite theme, well, when I say favourite theme I agree with Ordinary hopes in her post Petitioning for What?, in that we shouldn’t even need it to be a theme for discussion (…please do sign the petition though!)!  However on reading this update by Mum on a Mission about her an ongoing correspondence with Cineworld it’s pretty clear that we do need to continue to lobby for greater clarity of standards, as the big service providers still seem to believe the guidance doesn’t apply to them!

On the positive side for loos, it was great to read this fantastic guest post by Brody, Me and GDD about changing places toilets on Mumsnet, with loads of fantastic comments, many from people who hadn’t heard of the campaign before – it’s always brilliant to reach and gain support from people not directly affected by the issues!

Linky Info

This linky will be open for 2 weeks, please do share your posts about ideas and experiences (good and bad!) around physical and/or sensory accessibility of buildings, places, spaces and products below…. And do check in again next month to read the round up! Guidelines:

  1. Link up to 2 posts each month (old or new)! It would be lovely if you could add my badge (cut and paste the code in the box under the badge image below and add it into your blog post while in ‘text’ mode of your blog editor) or add a text link back to my site so that people can find the linky and read the other blog entries;
  2. Please comment on this post to introduce yourself if you’re new to the linky, and comment on some of the other linked posts to help share ideas and experiences!
  3. It would also be amazing if you could share your post (using the hashtag #AccessibilityStories and/or the shorter #AccessStories) on social media to help spread awareness of the issues around accessibility!  I’ll also try to retweet as many posts as I can!
  4. I welcome input from anyone that is affected by accessible design – users, carers, friends and family as well as designers, developers, managers and legislators (so pretty much everyone then!). I welome blogs from professionals and suppliers as well as individual bloggers as long as they keep within the spirit of idea exchange and are not sales posts for products or services.
AccessibilityStories

Shouldn’t all homes be inclusive?

Originally posted on Clos-O-Mat & Building Talk

Before my children came along and I became a full time parent carer, I worked in architectural practice.  Most of my design experience has been in home design, from individual house alterations to large scale newbuild and refurbishment projects.

Rough sketch of a house planI have to say I particularly enjoy the challenge of getting stuck in to an individual home project.  It’s extremely rewarding to see how much of a difference a bit of lateral thinking, and sometimes just a few small changes, can make to the way a house works for a family.  Perhaps by releasing a bit more breathing space through changes to the layout, adding better storage to make rooms feel less cluttered or maybe extending out or up to add extra rooms.

For me it’s important to take a broad view, think about how a family uses the spaces now, and in the future.  Are the room functions in the right places?  Is there any under-utilised space? Can circulation be simplified?

Becoming a mum to my little girl with developmental disabilities has reignited my passion for encouraging more widespread consideration of accessible and inclusive design in home design, as well as places, spaces and products.

I’m also a keen advocate of sustainable design (a much, probably over, used term!), and am passionate about improving the sustainability of our new and existing homes.  But by this I don’t just mean energy efficiency, that is just a part of what good sustainable design should be.

Sustainability is also about longevity, cost effectiveness and minimising waste.  If a home is built with flexibility in mind from the start, that seems to me to be fundamental to the sustainability ethos – in that it will last longer, cost less over the lifetime of the house and be changeable without being wasteful.

Designing a home for a whole lifetime’s needs (to standards like lifetime homes), will make subsequent alterations as unobtrusive and cost effective as possible and, quite apart from anything else, if you reach a time in your, or a loved one’s, life when greater accessibility becomes more critical, invasive building work is probably the last thing you will want to think about!

Accessibility also nicely slots in to the health and wellbeing aspect of sustainable design – why not make sure our homes more welcoming to ALL of our friends and family whose needs may be different to our own (perhaps granny with a walking aid, or your newly crawling niece or nephew?).

However for some reason inclusive design still doesn’t seem to be seen as a mainstream concept.  There’s a perception that accessibility is only for wheelchair users. House design is either ‘wheelchair friendly’ or not, and there really is an acute shortage of the ‘wheelchair friendly’ variety.

It’s widely acknowledged that there is a housing crisis in the UK at the moment, with particular shortages in the south east of England and this compounds the shortage of accessible homes.

EJ in her standing frame facing her baby brother in a bouncerSomehow the idea that inclusive design (or even better accessible or universal design) is of benefit to us all, isn’t being embraced!  I guess if you are young and fit it’s easy to be oblivious as to how our environment and buildings can make life difficult (or even impossible) for some people, but if you get injured and have to use crutches or a wheelchair, or even try to push a pram or wheel a large suitcase around, the environment can suddenly appear very inhospitable.

One of my dreams is to see inclusive design become ‘everyday’, for there no longer to be any need to differentiate inclusive design as a separate, niche, concept.  I want to see fantastic examples of accessible homes featured on TV makeover shows, and in the homestyle magazines, so that disabled people and their families are presented with inspirational examples of how fantastic their homes can be, and (perhaps more importantly) so that non disabled people see inclusive design as an interesting and exciting design approach for life-long happy homes – to break the perception that accessibility is all ugly plastic grab rails and old fashioned stair lifts.

I want to see a celebration of design that is flexible for a variety of needs, design that not only works for you, your children and your grandchildren but that is stylish and ideal homes worthy!

Good inclusive design should allow everyone to be able to participate as fully with family life (as they want to!) as naturally as possible – what can be more valuable than that?

Keep Calm and Carry On Linking Sunday

Let’s stop obsessing about shoes!

EJ's purple school shoes

EJ is delighted to get back to school after the summer holidays! She has no formal communication (or at least not that we understand……yet!?) but it was clear from the excited bouncing in her chair and her lovely big grin that she knew exactly where she was and was raring to get back to a routine, fun activities and way more stimulation than I’ve managed to provide here at home! She loves school!

EJ outside school with a big smileEJ is now in Year 1 at a special school.  Eighteen months ago we agonised over the decision on which school would be best for her.  Where possible I’d always choose inclusion.  However on visiting several schools, including our lovely mainstream village schools and several special schools we could see straight away that her school would be the perfect fit!

EJ’s school has a uniform.  I like the idea of school uniform.  It gives a sense of identity and belonging to the children, and makes organising an outfit in the morning so much easier for me!  EJ’s uniform is a nice balance of comfort and practicality and (I think) as smart as a school kid ever really needs to be.  Soft polo shirts, sweatshirt or cardigan and trousers (which in EJ’s case are generally jersey fabric or leggings).  They have an official branded clothing, or you can wear regular shop bought items in the school colours.  I guess at a special school they have to be pretty relaxed.  The children have such a variety of disabilities, sensory needs and medical conditions that clothing has to be comfortable and adaptable for school activities and to allow for independent and assisted personal care.

The same goes for shoes, black is the generally preferred colour, but as long as the shoes are practical for school activities we’ve found the school are happy, which for EJ is just as well as we struggle to find the right shoes for her in any colour!

Last year, when EJ was starting reception, I scoured the shoe shops and trawled the internet looking for suitable black shoes.  EJ used to wear AFOs (Ankle Foot Orthosis), splints, which made finding shoes pretty tricky.  The best we found were double velcro fastening sandshoes which allowed you to open the shoe right up to get the base of the splint into the shoe.  She now has orthotic insoles which raise her heel slightly within the shoe, so for this reason, and to give her some ankle support, she needs to wear ankle boots, preferably with two velcro straps to get the insole into the shoe correctly and obtain a good fit around her ankle.  EJ also has very small, and very the narrow feet (off the Clarks chart narrow!).

EJ's purple school shoesThe best we could do last year was dark pearlised purple boots and she has started this term in navy and pink sandals! (Incase anyone reading has the same sort of shoe fit issues as EJ, the brands we have found that work best for EJ are Ricosta and Richter – neither of which are cheap!)

This is probably a whole other post (rant), but the “girls” school shoes selection is flooded with pumps, mary jane and the occasional brogue style shoe.  Next to nothing with any ankle support.  Surely it’s not just children with “official” orthopaedic issues that would benefit from ankle supportive shoes?  I’ve seen a few options in the “boys” selections (although still not many in the school styles), and although I’m not swayed by the girl/boy marketing, the problem is boys styles are always wider fit, and just don’t fit EJ.  I’m very excited to have come across one black ankle boot this year online from mainstream brand Startrite, so I’ve ordered them today and I hope they will be narrow enough (they do have some patent leather detailing and some decoration though, so I’m not sure if they would pass a strict school uniform test…!).

So what if circumstances had been a little different, if  EJ’s academic learning was more consistent with a mainstream approach and we had chosen to send her to a mainstream school?

It made me really sad to read various stories in the news (like this one in the Guardian) about various state schools sending kids home for not wearing exactly the right clothes or shoes.  As I say, I like the idea of a uniform, but I don’t understand why it would need to be so strict that kids can’t wear something comfortable?

Lots of the comments on these articles made me equally as sad, things like:

  • “Kids need to learn about sticking to rules”!

But our kids aren’t in the army! They are learning all sorts of things at school, rules of all different kinds, their lives timetabled from the age of 5, why does a specific sort of trouser fabric or shoe style need to be a part of that?  Some kids like to challenge rules too.  Conformity isn’t the only right way, seeing things differently, being creative can be a valuable asset in life and work! Why get bogged down in a stand off about shoes when you could be supporting the next generation of great innovators!?

  • “Kids need to learn about the real world. I don’t have a choice about my work uniform”

Well, (1) that’s just one small aspect of the real world and work uniforms aren’t worn in all jobs and (2) most people do have some sort of choice in that, it’s part of the deal of that job contract. Kids at school don’t have a choice, they have to go to school and, until 6th form, that school was was most likely chosen for them by their parents or the Local Authority!

For several reasons I think an overly strict school uniform can be exclusive, rather than inclusive and levelling (the very reasons generally cited for having a uniform in the first place):

1. Sensory issues

Many kids have tactile sensory issues, sensory processing issues, ASD…. and have aversions to particular clothing (labels, stiff collars, scratch fabric, waistbands, restrictive shoes….). Children constantly distracted by their clothes are not going to be able to focus properly.  Isn’t it more important to make sure our kids are ready and receptive to learn to the best of their abilities than obsess over the specifics of what they are wearing?

2. Physical

The traditional school uniform is just not practical for many children with physical impairments.  Long skirts, stiff waistbands, stiff collar and tie, blazer.  In EJ’s case, she spends much of her day in her wheelchair or using mobility aids.  She needs help with personal care and help to transfer from her chair, either with adult support to stand or using a hoist.  She wears stretch fabric trousers, elastic waistbands and loose polo shirts so that she’s comfortable. Flexible clothing also makes dressing and undressing easier, currently for the adults assisting her, but in the future easier for her to do independently.

3. Highlighting difference

Some comments on these school uniform articles highlighting the issues for children with special needs and disabilities, were countered with replies like “oh, well that’s different, I’m sure the school would make exception” –  I think this is the attitude that makes me most uncomfortable! Disabled children, and children with other differences from their contemporaries, are already singled out, maybe visibly so or by a hidden condition (a learning disability, sensory issue, gender dysmorphia….).  All kids have enough going on trying to feel part of their school community without a big flashing arrow pointing them out as an exception.  Do they really need to be made to stand out more because they can’t wear clothing or shoes that don’t match the strict regularity of their contemporaries?  Perhaps even making the other kids resent them.  Will some kids just go along with the ‘rules’ in order to try and fit in, and as a result be uncomfortable and distracted throughout their school day? How will that help their learning?  And what of those who don’t have an “official’ diagnosis? Those who’re just fidgety and uncomfortable being restricted in shirt and tie, why shouldn’t they get to wear something more comfortable?

If we really want the uniform to act as an visible leveller then shouldn’t all kids be given the same flexibility?

I guess this is a request to all schools to think about how their policies affect ALL kids (and also to retailers to provide uniforms for all needs too – especially supportive shoes for girls!) and to think about making their school uniform policy inclusive, as a small step in helping make the school community and therefore future society more inclusive.

Spectrum Sunday